Replies to @helpmegir1 Hello: To date we haven't been billed for the ptau test he had last year,...

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Caregivers: Dementia | Last Active: 7 hours ago | Replies (17)

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@judimahoney

@helpmegir1
Hello:
To date we haven't been billed for the ptau test he had last year, so that's good (perhaps because it's now received fed approval).
Found out he tested negative on that test, so at least we know his dementia is not Alzheimers.
We follow the Mediterranean Diet, exercise 40 minutes daily, no alcohol, however hubby will no longer do the brain games (he just does word search puzzles now). We were also doing Tai chi for cognitive enhancement (Emory University's Brain program sponsored that, we found the videos on YouTube), however he won't do those anymore either.
His interests are changing and positive things that are supposed to help fall by the wayside over time. We do what we can.
Good on you for your positive lifestyle changes! 👏
All the best. 🌺

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Replies to "@helpmegir1 Hello: To date we haven't been billed for the ptau test he had last year,..."

helpmegir1 | @helpmegir1 | 7 hours ago

@judimahoney You are doing much better on exercise than I am. Well done.

I wish I had read through this site further before commenting. The research firm who did my blood test said the drugmaker Roche did not provide them with the quantitative results of my p-tau test but on reading other posts, I see that there is a numerical output that they aren't providing to me. So getting the test through the has only provided more incomplete information.

I was rejected by one neurology group because I don't have the symptoms even if I have the physical biomarker. I finally got an appointment with a neurologist at a second group but that appointment is a 5-month wait. I will see if I can get the p-tau 217 plasma test through them, hopefully with the cost covered. I moved when I retired to a place perceived to get better healthcare, but I have spent a lot of time waiting or being rejected for healthcare, something that never happened when I lived on a small island with only one neurologist.

Take care.

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