Thank you, Sue, for starting this discussion. I look forward to reading what others are doing. I have BE and MAC and currently have been on watch and wait monitoring for the past 2 years. Myself, I try to take some reasonable precautions that I have learned on this site. I have purchased a Safeway shower filter/wand and have it in both my shower and soaking tub. I have a 3 filter under the sink water filtration system in the kitchen (it only filters cold water) and have the water heater turned up to 140 degrees. I put the water I use for drinking and cooking, etc, through a Life Straw water pitcher and then use a hot pot to boil. I then store the water for the day in clean containers. I make my own ice from this water. I bring my own drinks or bottled spring water (I use Crystal Geyser) to restaurants and never use any ice from machines. I am not a soda person, but I will have an occasional soda from a can or bottle, but not a fountain soda due to the tubing. I stay away from hot tubs and swimming pools (both indoor and outdoor per ID doctor advise). I have no indoor house plants, again per ID doc advise. I no longer garden, but that is my choice, as it was not something I enjoyed that much to begin with. I mask indoors during the flu season. I nebulize with 7% saline and use my Aerobika for airway clearance twice daily. I then soak my equipment after each use in antimicrobial Dawn for 30 minutes. I rinse and let the equipment air dry after the first session, and after the last session, I put the equipment in a Grownsy bottle sterilizer. I live on a pond with a fountain. The houses are not that close to the fountain, but if it is very windy, I do not spend a lot of time out in the back yard. There are areas I know I need to be more careful with such as wearing a mask when I clean the house, etc. I need to work on that and be more consistent.
It is a lot for sure, and it is hard to explain to people why I do what I do. Of course, since it is not a well-known disease, I can tell they sometimes think I am ridiculous. I have done my part in educating a lot of people about BE and MAC, including health care workers that are not directly involved with this disease. Again, I am looking forward to reading what others do.