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Any Briviact experiences to share?
Epilepsy & Seizures | Last Active: 7 minutes ago | Replies (85)Comment receiving replies
@louissc
Hi Louis,
Thank you so much for sharing your epilepsy journey! It has certainly shaped you into a stronger person — and I truly admire that.
As I once shared in our group, epilepsy has also brought me some positive experiences. Here is the link, in case it resonates with you:
What are your Positive Experiences and Gains through Epilepsy?
https://connect.mayoclinic.org/discussion/positive-experiences-through-epilepsy/
I completely agree with you — through sharing, we discover different options, treatments, and perspectives we might never have found on our own.
I also very much relate to your feelings about the specialist who saved your life. My neurologist in São Paulo saved mine when I had status epilepticus back in December 2024.
This week, I have an appointment with him, during which I plan to discuss what I discovered at the ketogenic diet treatment center at the British Hospital in Montevideo. Fortunately, he is open-minded and not the kind of doctor who takes these discussions personally — and since this type of care is not yet available in Brazil, I believe he will understand. If I choose to go ahead with the keto diet treatment, I will still keep him as my neurologist. Perhaps you might approach your own specialist in a similar way, given that TCM and Western medicine are not commonly practiced together in Singapore?
You mentioned having had some form of bacterial inflammation. Did your doctors ever identify exactly what kind it was? I ask because it could potentially be relevant to understanding the origin of your epilepsy — it's worth exploring, if you haven't already.
Wishing you clarity and peace of mind as you make your decision.
Chris
Replies to "@louissc Hi Louis, Thank you so much for sharing your epilepsy journey! It has certainly shaped..."
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@santosha
Hi Chris,
Thank you.
TCM & western medicine are not practised by the same institution in Singapore. This is what made Taiwan so interesting since both are. I’m afraid I cannot recall much of the bacteria much. I’ll see what I can get out of him during my next consultation with him come June. I’ll be heading to Taiwan for my initial scans after, wanting them to do and draw their own conclusions instead of what I will be telling them what I know from my specialists here.
The ketogenic diet which you had tried seemed promising and I’m also interested. Although for any culture which has carbo e.g rice forming the most significant part of a meal e.g Indians & Chinese, practising it can be a challenge.
I was surprised Briviact wasn’t a newly known drug to my specialist, but it’s only after mentioning it myself then he put me on it as well. I guess the patient pool here just isn’t huge enough for the specialists to put patients on different drugs.
May all turn out well for you.
Cheers,
Louis