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myboo2u avatar

Diagnosed with prostate cancer recently.

Prostate Cancer | Last Active: 4 hours ago | Replies (21)

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Profile picture for Jeff Marchi @jeffmarc

@myboo2u
They don’t do a biopsy during the surgery. After the surgery is done, they will biopsy the full prostate to find out what the exact diagnosis is of the whole thing. You will get a report of the complete biopsy of the prostate.

How many lymph nodes are they going to remove? Are any of the lymph nodes showing they’re having an issue?. Taking out too many lymph nodes can be a problem over time. Did the PSMA scan give you any SUV numbers on the lymph nodes? That tells you If any cancer was found in them. Removing a lot of them when no SUV numbers were reported in the scan would not be productive.

The biopsy was done by a urologist, not a surgeon, right? You can contact the urologist to get more information about the details of the biopsy. Not sure if you can get ahold of the pathologist that actually looked at the biopsy and made the diagnosis of what was found in it. The urologist would have to contact The pathologist to actually find out more details.

Hopefully, you can get a second opinion from Epstein and will know exactly what’s going on.

One thing you want to ask the surgeon is how many surgeries has he done? Also, how many lymph nodes he expects to remove.

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Replies to "@myboo2u They don’t do a biopsy during the surgery. After the surgery is done, they will..."

@jeffmarc
Hi Jeff.
Thank you for the information.
I have to say this is really scary. I will reach out to the pathologist you suggested.

My partner has chronic kidney stones and his urologist based his symptoms on that. He's rather casual.
And seems inexperienced. But we've been seeing him for years.
He did not do the biopsy.
He referred us to the surgeon in the same office.
The surgeon quickly did a biopsy.
I begged for a PSMA PET Scan and scheduled it w/o the surgeons referral.

We then met with surgeon for 15minutes and he basically said that removal is best, and a lymphectomy.
He said, don't worry, you won't die from prostate cancer.
No information about lympnodes other than removing SOME, or anything else.

Just no bone spread via PSMA PET SCAN.

Very casual.

I had to find his scheduler to get a meeting with him prior to surgery. He has given us 15minutes to talk. I know everyone is busy but this is all new.

He's a well known surgeon here and has done thousands of procedures.
(DaVinci robotic surgeries)
His reviews are good. His bedside manor-not as good.

My partners symptoms are worrisome.
Flank pain, blood in semen, urinary issues, back pain, groin pain - due to the fact that he has chronic kidney stones, the doctors have said this is the cause of all of these symptoms.??

I've tried many times to discuss more with his urologist but no luck. And I've tried to reach the pathology office but no response-I'd like to discuss the results in detail.

With the cribriform area, I will reach out to the pathology office that you recommended.
I'm worried the surgeon will be upset by this-but this is life altering.

I really appreciate your time and thank you for all of the helpful information.

Melinda