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← Return to Mayo Clinic / John’s-Hopkins - anyone receiving treatment at either?
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Mayo Clinic / John’s-Hopkins - anyone receiving treatment at either?
Neuropathy | Last Active: 21 hours ago | Replies (27)Comment receiving replies
I have CIDP, in the same realm as Anti-Mag.
My treatments so far
1. IVIG for 6 months - no improvement
2. Prednisone taper 70mg down to 5mg over 4 months - no improvement
3. 2nd IVIG at increased dosage for 6 months - no improvement
4. VYVGART HYTRULO® (efgartigimod alfa and hyaluronidase-qvfc) - 14 weeks - no improvement
5. Riliprubart (Drug trisl) - 48 weeks - no improvement.
Thanks for asking
Replies to "I have CIDP, in the same realm as Anti-Mag. My treatments so far 1. IVIG for..."
@jedge54 how were you diagnosed with CIDP? Have you been retested recently? Are you progressing or just not improving? I just wonder if you’ve been misdiagnosed since treatment hasn’t worked.
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@jedge54
Thank you for sharing.
Sorry to hear there has been no improvement with the various treatments.
Hopefully there is new treatment soon.