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Polymyalgia Rheumatica (PMR) | Last Active: 10 hours ago | Replies (19)
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Replies to "@purplebike Interesting, I did get GCA after Covid. I always thought Covid, or the Covid vaccination,..."
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@dbyrne and all... I'm interested to get your information. I put the timing and multiple new illnesses together as a logical consequence. I had a lighter Covid infection in July 2023, using the new Prescription drug from my PCP with D3, Zinc, Magnesium, and a couple of other supplements most I was already taking. I had the 1st and only vaccination at Mayo the 1st day it was available... I was called to set an appointment. I was honored to be considered in such bad shape I should be one of the first to get it... What a dubious honor! Anyway, that was in 2020??? and as I live an isolated life anyway due to helping my disabled son and my worsening health issues, I thought I'd avoided Covid. Nope. The new strain evolved and I got it in July 2023. Took the meds and was ok. Not great, but did fairly well.
Then, in October 2023, I got very ill and tested positive. I got the 3 Remvesidere infusions at Mayo... after the 2nd, I began to get worse with pulmonary issues. Mayo infusion staff sent me to the ER and I had Covid pneumonia, heading for hospital admission. I negotiated my way home since I use a Bipap with O2 at night, religiously, and as long as I could keep my O2 up to 90 at home using the Bipap/O2 system, the ER doc allowed me to treat at home. I did and after 4 solid days and nights on the Bipap with O2, I began to improve. Shear determination! I willed myself better!
I survived that illness, but I was extremely ill and it was tough. Alone. Within a couple of days I had enormous pain in both my shoulders, both hips, to the point I couldn't turn over or move in bed... with other symptoms. The doctor ordered Prednisone immediately for PMR.
Within another few days, as that began to subside, my head/scull pain was severe and both sides of my head, temples were in sharp pain, my eyesight became blurred and changed. GCA hit. The doctor increased the Prednisone, then Mayo rheumatologist put me on Methotrexate as well to attack the GCA. It worked well and those symptoms reduced. It took longer for the PMR to back off, and I'm not sure it truly has.
After all that happened in 2025, with paralysis and sepsis, etc, I think my entire autoimmune system was compromised, my nervous system as well. So, now I'm steady-ish on 14 mg Prednisone.
So, yes! Covid is the underlying culprit. Perhaps including the vaccine, don't know. I do know I now only take the flu shot annually as I had the long-term pneumonia shot and RSV previously. Never will a Covid vaccine come near me. Nor any other vaccine... annual flu is important and helpful.
I now have varying degrees of activity from Vasculitis, Sarcoid, PMR, GCA. I think that's all the autoimmune diseases I have. Have multiple other, some related some not, illnesses. Vaculitis came after Covid as well, which makes sense as it causes blood clots and attacks the vascular system. I had a pulmonary aneurysm last year...
I'd wager there are many stories you will hear from especially older folks who experienced many of the same issues following that pandemic. It is and has been constant infections, blood issues, autoimmune, lungs, heart, brain...
Blessings... Elizaeth