Well, I was off of the prednisone for 1 week. I was taking 1/2 mg every day and then stopped. I felt good for the first few days and thought I was healed. Well, my pain came back pretty intense in my shoulders, neck, legs and feet. I couldn't bear w even taking 1/2 tramadol at night, so unfortunately I took 1/2 mg of prednisone this morning after a week of none.
Maybe I won't have to go above the 1/2 or 1 mg of prednisone.
What a mystery this PMR is.

It sure is a mystery - I was diagnosed in March this year and started on 10 mg prednisone. Apart from the sleeplessness side effect I was doing OK but then had a fall onto my bad shoulder and so have had pain from that to deal with. Started to reduce prednisone gradually and got to 8 mg day but then the stiffness problems started up again. So after more blood work I'm back on 9 mg which is disappointing as this looks like it's going to be a long haul. I haven't put on any weight weight but I am noticing some puffiness on my face.