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New to NET: Not sure what to expect from here
Neuroendocrine Tumors (NETs) | Last Active: Apr 19 5:42pm | Replies (10)Comment receiving replies
@villardian
I remember that John Hopkins board! Yes - it was a life saver! There was that one other online forum and that was it.
I'm so glad you're journey has been a relatively easy one. I'm so grateful that you posted here because the newly diagnosed don't often enough get to hear the successes and stories of hope like yoursm Most understandibly move on and are enjoying their life and not visiting these boards. So thank you!
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@lindabees thanks to you, too!
And i'm SO glad you guys are still around, too!
I still clearly remember, being 28, being told "you have a tumor in your pancreas," worrying that it was "Big-C" cancer (s opposed to that "Little-c" benign type mine ended up being, because it WAS caught so early!), and being SO scared!
And--yes, the old JH boards were the only place with other patients--and Michael PA's posts about his wife who also had a PNET and was a survivor--was the ONLY guidepost i had back then.
Which was why i KNEW-from his stories about her case & her care, that i needed to learn to read research papers, and keep on top of any research being published--as i'm sure you both know!
I was thrilled to discover Mayo had set this up--because those old boards were SO helpful in helping us "not feel so alone," and in finding & sharing up-to-date info!
And i'll definitely be recomminding this place to some folks i know, too!