← Return to Anyone had sarcoidosis in their joints?

Discussion
barscr2 avatar

Anyone had sarcoidosis in their joints?

Autoimmune Diseases | Last Active: Apr 19 2:29pm | Replies (4)

Comment receiving replies
Profile picture for cawolfwitch @cawolfwitch

@fairn
It has been a 23 year nightmare of misdiagnosis, normal labs, psychiatric treatment of exacerbations and remissions.
Presented in left knee as a teenager and progressed to multiple system involvement.
Currently still performing my 17th round of diagnostics but we have Granulomas in skin biopsy, ACE at 61, persistent borderline
Ok

Jump to this post


Replies to "@fairn It has been a 23 year nightmare of misdiagnosis, normal labs, psychiatric treatment of exacerbations..."

@cawolfwitch I'm so sorry to hear that, but not terribly surprised. I have been told I have mild apical scarring in the lungs, supposedly from a prior (unknown) granulomatous disease. A pulmonologist was adamant that it couldn't be sarcoid due to the location. I have wondered about the skin involvement, I can feel small granule like spots in my skin, particularly the abdomen, but nothing shows up in an MRI. Was the skin biopsy done after scans failed? Thank you for your response, hoping the diagnostics will provide the answers you need.