Connect
← Return to Devastated by support group meeting: I'm doing everything wrong
Discussion
Devastated by support group meeting: I'm doing everything wrong
Prostate Cancer | Last Active: 22 minutes ago | Replies (81)Comment receiving replies
@fritzo Virtual support group meetings that I sometimes attend:
> Each Wednesday: 7:00PM (ET): an independent support group (I like this one because it’s not affiliated with an institution; they can speak more freely and openly.)
> 1st Wednesdays: 7:00PM (ET): Affiliated with Zero. A good one for beginners; a bit too warm & fuzzy for me, but I do stop in once in a while to listen for anything new.
> 2nd Wednesdays: 1:00PM (ET): Affiliated with Mayo Clinic. Always informative.
> Last Wednesdays: 7:00PM (ET): Cancer Support Center (Cincinnati/Northern Kentucky). A good place to tell your story and listen to others’ stories.
> 3rd Mondays: 5:30PM (ET): Ackerman Cancer Center. A small group; most attendees have had proton radiation (like I had). They serve pizza to the in-person attendees; bring your own if you’re virtual.
> 4th Mondays: 4:00PM (ET): Duke University. Well moderated.
Also, Zero, PCRI, AnCan, and other groups hold other regular virtual sessions or sponsor conferences.
Each month I search Eventbrite for free upcoming virtual PCRI presentations worldwide; I only listen in on those (unless I’m asked a question).
And I attend two local in-person support groups and sometimes a third one.
Replies to "@fritzo Virtual support group meetings that I sometimes attend: > Each Wednesday: 7:00PM (ET): an independent..."
This is SO helpful!
On that first one, is that one you can message me? Didn't see the link. I like the idea of speaking more freely.
Pizza and a meeting - love that. Do confess, during my now tragic/not-so-tragic recent meeting, I did noosh on pizza during the zoom. It had been a long work day. My bad.
Yeah, finding forums/groups is super challenging. Seems like you have different needs at different times. My next need will be post surgical recovery and the first year adventure.
I am so THANKFUL for this Mayo Connect forum. So much better than a few others that I have joined.
Connect
@brianjarvis
You should check out ancan.org advanced prostate cancer meetings. First and third Mondays of every month at 5 PM Pacific time second and fourth Tuesdays at 3 PM Pacific time. You can go to the website and watch one of them to see what’s going on. They’re not Affiliated with any medical institution. They’ve been giving advice to people for about 15 years on what to do, how to get treated. They have meetings for low and intermediate as well as Active. surveillance and Many other meetings, including those in the military, who need help getting treatment and they have even started to cover other diseases. They have meetings for though was under 60 with cancer and meetings called speaking freely, where people can talk about everything but treatment, Emotional issues.
When new people come to the meetings? They are helped First. They go over their cases and give advice about treatment. There’s usually at least three doctors in the meetings, when they are giving advice they can call on them for medical recommendations.