← Return to role of ongoing medical testing for idiopathic peripheral neuropathy

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@brennankb55

Please let us know how the LDN works for you. Who prescribed it for you? I was on gabapentin (1800) and it was causing tremors so I weaned off. Recently, I asked about LDN when I had my neuromuscular neurology appointment; he would not prescribe because he only prescribes what is currently recommended and evidence based?! He prescribed Lyrica instead. I have been diagnosed with Small fiber neuropathy that came on very rapidly in 2024.

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Replies to "@brennankb55 Please let us know how the LDN works for you. Who prescribed it for you?..."

@jankavs ~ Will do! My primary who's a D.O. gave me the prescription after I asked him for one. He initially prescribed 50mg and I had to explain the dosage differences and what they're used for. He quickly rewrote the prescription after I located a compounding pharmacy. He's had me on Lyrica the past 3+ years, but he is very intrigued by LDN and said "this may actually work!" I'm seeing a neurologist in June, so I'll be curious what he says about it. Most doctors just default to Gabapentin or Lyrica, usually at the instructions of the hospital administrator. My primary actual confessed that he routinely advises his patients to take Vitamin D3 - even though that's not a protocol the hospital approves of! He said it's more important to him to do what's right for his patients! I totally respect him for that move!