← Return to Mayo Clinic / John’s-Hopkins - anyone receiving treatment at either?

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Profile picture for jeffls @jeffls

I went to Johns Hopkins was diagnosed with Anti-Mag Neuropathy, a rare autoimmune disease, and got a second opinion at the Mayo Clinic, which confirmed my diagnosis. I find both places to be top notch when dealing with rare conditions. They also have expertise in treating these conditions. My local neurologist had not heard of Anti-Mag neropathy, if I would stopped with them my diagnosis would have been idiopathic (unknown cause) neuropathy.

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@jeffls
Thanks for the reply. I live much closer to JH than Mayo. Was it difficult to get an appt. At JH? Did you get any treatment at JH. I am out of treatment options for my CIDP.
Good luck with your AMN.
John