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← Return to Bullous pemphigoid
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Autoimmune Diseases | Last Active: 3 hours ago | Replies (9)
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The usual starting treatment for BP considers topical steroid and often prednisone for control. Doxycline works in milder disease.
Dupixent has shown very good response and biologic treatment avoids
steroids side effects.
Replies to "The usual starting treatment for BP considers topical steroid and often prednisone for control. Doxycline works..."
@seniormed
Dear leak,
Agreed, Dupixent is the answer and hopefully it works for you too! I’m totally clear after five months on Dupixent (plus initial bridge with prednisone). No itching or blisters. Only issue is doctor doesn’t know when to stop med, might try break in a few months and restart if symptoms return. Drug is very expensive, but thank goodness Biden put $2000 cap on pharmaceutical expenses! Good luck!
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@seniormed Sadly I had to start with my Dr. and not a Dermatologist. I love my Doc, they just really had no clue about this disease and apparently it's very rare. I live in rural northern MI and trying to get established with a derm takes time. So, in the begining my doc did research and put me on prednisone. The problem was, it was not strong enough of a dose. I ended up gaining probably 20 pounds or more in water weight. That brought on all kinds of misery. I was put on water pills and then landed in hospital because I had lost too much of my salt. After that, hospital got me into a derm office where I started new treatment. A much stronger dose of steroid as well as dupixen shots. This all began at the first of March. Finally April 18, I believe I'm going to be at the end of this soon. Just a super scary ordeal. One thing I'm not sure on is the dupixent and how thats supposed to help. Thank you for reaching out, be well.