Hi pmpleak - A few years ago I had a skin outbreak that looked and behaved exactly like BP - the large, spreading, weepy bumps that leave the skin raw and painful... It was horrible and my dermatologist was sure that it was BP. When the biopsy came back negative for BP, she was so surprised that she ordered some blood tests specifically for BP and they, too, were negative. She did keep me on doxycycline for a while, while my arm (primary site) was raw and looking like I should be living in a leper colony. I still wonder what the heck it was if it wasn't really BP. It did finally resolve, but it led to a Dx of atopic dermatitis (eczema) and I am on Dupixent. I can tell you for sure that with all the various ways eczema can look, it never looks like that initial outbreak I had.

So while I was not diagnosed with BP, I certainly understand the misery you've experienced. I could attach a photo series showing how the lesions developed and got worse, but I fear it would gross people out too much!