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DiscussionDevastated by support group meeting: I'm doing everything wrong
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Replies to "@jcf58 23 years ago I entered a clinical trial at UCLA on a personalized vaccine developed..."
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@wheel1 All I can say is that you are a warrior. That is amazing about your 18 year remission. Not the same, but my wife has diagnosed 26 years ago with a serious lung disease (PH). They told her to make her plans. She's still hanging in there and now there dramatically more amazing treatments for PH then way back when (basically three then, Flolan, lung transplant or a few rare responders to CCBs, which she was).
I guess the task is to stick around long enough that we can take advantage of the new technology. Safe travels on your journey!