@chall7602 I’m so sorry your daughter’s quality of life has been so badly compromised. I hope she gets palliative care (management of her issues). My oncologist and nurse practitioner have been wonderful and I haven’t needed additional support, so far.

I have been very fortunate. Treatment affects us all in such different ways. I am doing very well after initial debulking surgery including a radical hysterectomy, 6 months of fortnightly cycles of Folfiri and Avastin with the 46 hour take home pump and then HIPEC with cytoreductive surgery including a peritonectomy (the so called “mother of all surgeries”).

I had part of my bowel removed but woke up without a stoma and bag.

I’ve been in remission with close surveillance PET—CT scanning and blood tests. Initially every 3 months (sometimes 2) and recently moved to 6 months.

For quality of life I need to manage what I eat, how much I eat and how often I eat to minimise constipation or diarrhea as well as abdominal pain especially at the resection site. I’ve been so lucky in the quality of life I’ve got. I still get tired and need to manage that. I exercise daily (long walks with my dogs and playtime) and eat nutritiously most of the time. The mental side for me can be tough which is why focussing on the here and now and what I can do and not what I can’t any more (like running long distances) has been so important for me.

Please give your daughter a big hug from me ❤️‍🩹