← Return to role of ongoing medical testing for idiopathic peripheral neuropathy

Discussion
Comment receiving replies
Profile picture for megidigo @megidigo

@heisenberg34
He did tell me I may improve in 2 to 3 years but I have documentation where he put on paper that I will deterioriate. But to your point Ive noticed that doors close with other doctors Im sent to once I mention neuropathy. So ive decided no more doctors appointments unless Im sent to the hospital or just dealing with my primary as I need medication refills.

Ive been told it isnt a death sentence but due to circumstances for me it actually is. I just wander if someone out there will listen (not online but in real life) but not looking that way. Sorry I do realize my posts turn into vents but its all I got.

Jump to this post


Replies to "@heisenberg34 He did tell me I may improve in 2 to 3 years but I have..."

@megidigo I hear you loud and clear. Sometimes I think that the only way to get real care is to go to the ER and tell them that I am in severe pain and nothing helps. That way I should be able to get a team looking into my situation not just one, uninterested doc.

@megidigo ~ No apology needed. We all need to vent rather than keep our frustration bottled up. I've had my idiopathic neuropathy going on 15 years. It's been a "trial and error" process to find what helps and mostly what doesn't. Different things help different people, so one really has to do their own sleuthing, but so many share what they have discovered. Gabapentin didn't help me at all, but it helps a great majority. Lyrica has helped for the past 3-4 years and others can't tolerate it. There are various topical creams and gels and even essential oils that are helpful. Some swear by CBD. I've spent so much on useless gimmicks and "cure" promises. So for myself, I trust in the God who sent His Son Jesus to die in my place, and that believing in Him, I can have eternal life - regardless of what this life becomes. But I find great hope, peace and encouragement in that, and I pray it for all who are likewise afflicted here. It's definitely a journey. I'm praying God will direct you to someone who will actually listen to you.