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Devastated by support group meeting: I'm doing everything wrong
Prostate Cancer | Last Active: 46 seconds ago | Replies (45)Comment receiving replies
I chose Tulsa Pro for my 4+3 after doing a lot of research and soul searching. I ended up in the clinical study at Mayo Rochester. I liked the technology, but I also wanted the chance to potentially give back by giving guys other choices going forward. I know all the potential risks (just like all treatments have), but I was ok with that. I am 2 years in and no sign of cancer. No choice is easy and my advice to all guys is do the research, make the choice that is right for you, and never 2nd guess that choice! Easier said than done though!
Replies to "I chose Tulsa Pro for my 4+3 after doing a lot of research and soul searching...."
@jcf58 I think you represent what the hope is for these new treatments. So happy it's worked out. I've now learned that I am most likely not a candidate due to my tumor location. But, I'm hopeful they keep developing these treatments.
Yeah, second guessing is brutal.
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@jcf58
23 years ago I entered a clinical trial at UCLA on a personalized vaccine developed for my cancer, non-hodgkins lymphoma. It was randomized which gave me concern, and you have to go through all the tests like having surgery to pull a lymph node out for the possibility of the vaccine, giving yourself self 3 daily injections for six months after your possible vaccine shot by the doctor each month. Extra bone marrow biopsies during treatment, still getting the standard of care of 6 months of chemo before the trial. Two years I relapsed, was unblinded and found out I did get the personalized vaccine. I was back to just a standard of care monoclonal antibody infusion this time for treatment. Several more years passed and ultimately the clinical trial was determined a failure as most are, but my oncologist was and still is that I have now had a miraculous 18 year remission. He said their is no way to ever know now, but subsequently the vaccine might have had some synergy with the later monoclonal antibody. He was intrigued. Then three years the prostate got me, and I also looked again into clinical trials.