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DiscussionDevastated by support group meeting: I'm doing everything wrong
Prostate Cancer | Last Active: 45 seconds ago | Replies (45)Comment receiving replies
Replies to "Update: I am still shocked by what happened in my support group session last night. I..."
I think focal therapies can be the future of treatment. But results show we aren’t there yet.
@fritzo
Dear Fritzo, it IS overwhelming , the whole process is just horrendously stressful - so much information and so much to learn in such a short period of time, so many things to consider; what, when, with whom, where, how, why, and than some 🤕. It happens to me to even now after so much reading and learning - there are days when I feel like I am tabula rasa ! During appointments the pressure was even worse and between my heart pounding and me trying to concentrate on questions the risk of loosing notes became real issue, so early on I decided to start recording conversations. It was a life saver ! It helped me go through consultations at latter time and refresh my memory with every detail.
Also, you have to keep in mind that presentations like one that you saw are very often self promoting, I mean even some popular videos that everybody watch here are basically promotions for that facility or that person . Nothing bad about promoting, but everybody (meaning "consumers") has to be careful and do their own research and listen to ALL sides and than make their decision. Also, decisions are not written in stone - if you wish to have some more time to ponder (week or two ) , that is OK too 😎.
PS: I forgot - did you ask your surgeon how many RPs he performed and what is his record with ED and incontinence rate ? If he did thousands and with great results, you are really in good hands.
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@fritzo "He was incredibly convincing and incredibly enthusiastic."
The word "Incredible" is incredibly 🙂 overused, but here it is the correct word. 🙂