@db72 thanks Suz appreciate it! I have the same diagnosis as you except ive been told its from diabetes, toxic and also idiopathic. No one in my family has CMT but I was planning on bringing it up with my neurologist the other day as another poster mentioned it as well. Sadly didnt really get the chance in the 15 minute appt as the neuro told me he doesnt need to see me anymore and for me to go live and enjoy life….. thanks doc. I noticed in some of your posts you mentioned tinnitus and Ive been getting that too lately. I did bring that up and was quickly told nothing I can do but if you want I can refer you to some other specialist. I declined as I figured there would be no point. I had some other concerns I didnt get the chance to explain or bring up as I was rushed out of his office as he let me know he didnt need to see me anymore while acting like he had cured me of this condition. The most he told me was to not worry about it. So I no longer have a neurologist neuromuscular specialist. I guess there wasnt much he could do but it would have been good to have access to the guy if I lose complete mobility. I wander why a neurologist isnt interested in having a patient with neuropathy. NEUROlogist…NEUROpathy lol. Im starting to think theres no point to see doctors anymore as they just lead to dissapointment and make me feel worse after seeing them.