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My treatment journey with tongue cancer: And yours?

Head & Neck Cancer | Last Active: May 26 11:38am | Replies (29)

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@jaybb1 Six months ago I knew nothing about MLD, CDT, Radiation Therapy, lymphedema, etc. Likewise, I did not know about Tongue cancer (endocarcinoma). I so now. Many hour of reseach and reading good postings from people on this site. Thank you everyone.
Did not know if it would be helpful to anyone to review the criteria I used in searching for a CLT that I just identifed a few days ago. Here is my criteria-
1. Must be a Certified Lymphedema Therapist (CLT) that mainly does H&N.
2. Many years of experience doing H&N Therapy.
3. Must take a CDT (Certified Decongestive Therapy) approach
4. Must be certified by one of the better programs (ie Norton). I understand that there are programs out there that are, unfortunately, 100% on-line with no classroom experience
5. Must do MLD, not mainly motion exercises.
6. Must be LANA certified (Lymphedema Association of North America), OR incorporate their Guidelines.
7. If possible, multiple visits per week is perferred.
8. Provide handout material.
IF the Therapist is missing one of these points, I am ready to find another Therapist. My Search revealed there are not many who are out there.

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Replies to "@jaybb1 Six months ago I knew nothing about MLD, CDT, Radiation Therapy, lymphedema, etc. Likewise, I..."

@jaybb1 Maybe ask you OT about red light therapy. Neither one of my OTs knew anything or were interested in discussing. But I know some on this forum use it. And Sloan Kettering has begun offering it in addition a patients radiation treatment. Here's the link. https://www.mskcc.org/cancer-care/patient-education/about-your-photobiomodulation-therapy