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DiscussionDevastated by support group meeting: I'm doing everything wrong
Prostate Cancer | Last Active: 4 hours ago | Replies (37)Comment receiving replies
Replies to "Literally hundreds of thousands patients around the world have had surgery. Initially many patients prior to..."
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@wheel1 So much collective knowledge here in concise form.
• Making a treatment decision for patients is really hard.
• Getting all of the specific information about what your specific treatment options is hard. (especially with all the options today)
• Every treatment can fail because cancer is so individual and different. Leaving options for recurrence treatment is huge.
• Medicine is a moving target. You have to decide based on the knowledge of today.
• What is an exciting and promising new treatment is most likely not yet proven.
• Patients that do well tend to move away from the forums because they don't need the support anymore. A few wonderful souls hang around to pass on their knowledge.
• Living with cancer is hard.
• Your fellow patients are a lifeline that get you through this hard time.
So, yes, I've learned first hand the adage that surgeons want to cut, radiologists want to radiate...and now, Focal docs want to focate...or perhpas its ablate. You can't blame them. They've dedicated their lives to a practice to making people better.
Seems like the big benefit of Focal therapy is that you can treat now and not suffer as serious side effects (mostly) than IMRT or radical prostatectomy. To me, Focal doesn't feel curative. It's a way to kick the can down the road. The benefit of Focal is that it keeps most of your follow-up treatments available.
I hoping for curative...or at least best odds. So, it looks like surgery for me. It leaves the option of radiation/hormone therapy as effective recurrence treatments should I need them later.
Like someone else said, you have to make a decision and then make the best of that decision.
Just wish that I hadn't been hit with full force by a strong advocate for Focal a few days before surgery.