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DiscussionTurnbull-Cutait (T-C) procedure: Share your experiences
Ostomy & J-Pouch | Last Active: 9 hours ago | Replies (11)Comment receiving replies
Replies to "@verol65 Hi thank you for taking the time to message me. I line in the UK..."
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@masonfoxy
I'm sorry you are in so much pain and high level of LARS.
Is your pain internal? Is it the skin around the anus?
What is your diet like? What foods are you eating?
Are you taking loperamide o psylium husk o anything to try to regulate your bowel movements? Are you using a bidet and a squatty potty?
I consider my LARS to be in the lower levels. I cluster part of the time, and other times it's 5 or 6 or 7 bowel movements in a day, but not clustered. Occasionally, there is a day I don't go to the bathroom, and some days, I'll only go 2 or 3 times. It varies. I take it one day at a time.
I do have accidents occasionally, usually not that distressing and never embarrassing. When I travel or if I happen to have a bad cluster day, I'll wear washable menstrual pads designed to be used at night. They're really big at the back and have some kind of carbon thing that controls the smells. I have not worn pull ups at all.
I did have pelvic floor therapy with post tibial nerve stimulation (PTSN). It helped with the control, without being perfect. I also keep doing Kegel exercises.
I have learned to balance my diet between fibrous foods and foods that slow the instentinal transit like bananas. It's a balance of soluble and insoluble fiber that helps us. It tends to vary some from person to person.
Would you be interested in joining groups for people with LAR and LARS. on Facebook and online?