← Return to Multiple Sclerosis (MS) - please introduce yourself

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @teresasangel - thanks for introducing yourself and talking a bit about your situation with MS. You mentioned treatment with ofatumumab (Kesimpta). How has that gone, giving yourself injections? Have you felt this therapy has been effective for you?

Hi @jakedduck1 - I did not realize you were being evaluated for possible MS or muscular dystrophy. You have a lot to sort out with dealing with multiple illnesses and trying to figure out if the symptoms of numbness, balance and weakness in your legs are for sure from neuropathy, the language issues are for sure from the epilepsy medications, and the dark spot on your brain is from a stroke at a young age, instead of any of these having a relationship to MS.

I trust that the doctor at Stanford will sort all this out for you. Perhaps in the meantime, some of those in this discussion with a history of MS such as @recruiterbreedm @wahoochar @msr2323 @travel4fun and others will also have some thoughts on these symptoms and possible relationship to MS. Hoping they also can provide some input on whether frequent falling is a first symptom of MS.

Have you experienced minor or major injury with these falls you mentioned, jakedduck1?

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Replies to "Hi @teresasangel - thanks for introducing yourself and talking a bit about your situation with MS...."

@lisalucier
I've had a few shoulder surgeries and l many dislocated shoulder reductions but I guess that's par for the course with epilepsy.
I would've thought that if I had a neuromuscular disease, I would've shown more symptoms by now but I don't really know anything about those types of diseases. I'm convinced my falling id seizure and neuropathy related but I appreciate my new doctor wanting to check things out. My appointment at Stanford isn't for 6 months.
Take care,
Jake