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← Return to Ulcerative Proctitis 18 months after Proton Beam Therapy?
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Ulcerative Proctitis 18 months after Proton Beam Therapy?
Proton Beam Therapy | Last Active: 19 hours ago | Replies (7)Comment receiving replies
I did not have that experience. I had 28 fractions of proton beam radiation (2.5 grays per fraction) five years ago (19 April - 28 May 2021), along with 6 months of Eligard. We used SpaceOAR Vue. Had no rectal/bowel side-effects at all.
Did you use a rectal spacer?
How many fractions did you get?
How many grays of radiation did you receive per fraction?
For your radiation-induced proctitis (& other tissue damage), have they recommended hyperbaric oxygen therapy?
Replies to "I did not have that experience. I had 28 fractions of proton beam radiation (2.5 grays..."
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Hello, @brianjarvis, thanks for your reply. At Loma Linda a water-filled rectal balloon was used instead of SpaceOAR due to their patients’ better experiences with the balloon. I also received 28 fractions over a 5 1/2 week period. Not sure how many grays of radiation per treatment were received. The suppositories my local team recommended slowed the bleeding but they have not cured the ulcerative colitis, just as they had advised. I will move forward with phase 2 of their suggested treatment, which hopefully will cure this condition, and will post more as I learn what this next treatment entails…