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Functional Neurological Disorder (FND); Anyone have FND?
Neuropathy | Last Active: Jul 30 6:30am | Replies (39)Comment receiving replies
I think I have that I haven't been formally diagnosed because many doctors don't really know about that. There is a place in California called re-active physical therapy. I think that you can look it up on a website. They treat only FND and they have a whole program. They also have an online program so you might want to Google. It do a webinar on FND so it's interesting.
Replies to "I think I have that I haven't been formally diagnosed because many doctors don't really know..."
@bealillie Thank you for your warm understanding. I've been researching FND for quite a while now. Instead of seeing myself as a person with FND, I'm doing trauma work with a therapist, exercising regularly, eating well, and "trying" to keep regular sleep hygiene. It's still frustrating when my body doesn't react the way it's supposed to. I have to be careful when making my evening tea before bedtime, where I'll read before sleeping, my arm will involuntary fly up and send scalding water all over the place, especially on my hand and arms. I try to take care, but it's such a simple, natural action, that I burn myself nearly weekly. Fortunately, I don't own a TV and I shut down the internet when my app tells me that it's time to wind down. I was just denied a claim for FND by the Veterans Administration, which upset me for a while, especially because I served in Vietnam and get a small disability for shrapnel wounds to my leg. FND is not well-understood by evaluators, or many physicians, yet. I'm going to hire an attorney to dispute the claim rejection. Until then, the best I can do is be grateful for the life I have--a loving wife, a place to live, never going hungry, and knowing how to live the best life possible.
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@bealillie I was originally diagnosed with Parkinson's Disease while living in Brazil. After settling back in CA, I saw a highly respected (and expensive) neurologist several times who told me he was 95% certain that I had PD. After taking a DaTscan with the VA some months later and testing negative, I was told to see neurologists who then referred me back and forth from neurologist to mental health professionals. This went on for several years until I saw the Chief Psychologist at Stanford Univ Medical, who diagnosed me with FND. His advice: don't get stressed out. It will worsen your symptoms. That was after hearing from other health professionals that, "It's all in your head." Doctors are reluctant to diagnose FND, so you need to document your symptoms and be persistent. Good luck to you. I've heard from others who have experience the same runaround as me. I hope you have better and faster results.