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Functional Neurological Disorder (FND); Anyone have FND?

Neuropathy | Last Active: 5 hours ago | Replies (10)

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Profile picture for bealillie @bealillie

I think I have that I haven't been formally diagnosed because many doctors don't really know about that. There is a place in California called re-active physical therapy. I think that you can look it up on a website. They treat only FND and they have a whole program. They also have an online program so you might want to Google. It do a webinar on FND so it's interesting.

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Replies to "I think I have that I haven't been formally diagnosed because many doctors don't really know..."

@bealillie I was originally diagnosed with Parkinson's Disease while living in Brazil. After settling back in CA, I saw a highly respected (and expensive) neurologist several times who told me he was 95% certain that I had PD. After taking a DaTscan with the VA some months later and testing negative, I was told to see neurologists who then referred me back and forth from neurologist to mental health professionals. This went on for several years until I saw the Chief Psychologist at Stanford Univ Medical, who diagnosed me with FND. His advice: don't get stressed out. It will worsen your symptoms. That was after hearing from other health professionals that, "It's all in your head." Doctors are reluctant to diagnose FND, so you need to document your symptoms and be persistent. Good luck to you. I've heard from others who have experience the same runaround as me. I hope you have better and faster results.