← Return to Scleroderma (Systemic Sclerosis): Anyone else?

Discussion
kimberlyf avatar

Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: 22 minutes ago | Replies (69)

Comment receiving replies
Profile picture for taylor05 @taylor05

Hi ,
I've been diagnosed with limited scleroderma, crest as well... I am switching Dr's to John Hopkins though. I'll be retested and taken better care of. I also have 3 places, Tumors with anticarcinoma ( spelling I'm sure is Wrong)
Cancer. Just starting the treatment process next week. Port in Monday Chemo first infusion Wednesday... I also have Raynouds and sjögren's syndrome plus antiphospholipid syndrome and that is scarry because I've had several ischemic strokes and so I'm on blood thinner and a statin as well. I'm scared of a big stroke! All the ones I've had so far are mild ones and usually takes a few months to rehab back. Speech , memory and balance.. Take care!!

Jump to this post


Replies to "Hi , I've been diagnosed with limited scleroderma, crest as well... I am switching Dr's to..."

@taylor05 Good morning,
I am saying a prayer for you!! That is a lot to take in.
Take good care of yourself and stay in touch!

@taylor05

Sorry, to hear about all of your conditions. If you do not mind sharing, how did you notice mild ischemic strokes? What were the symptoms? Did you have numbness and tingling just on one side, or symmetrical, on both sides of the body?

I may be going through some episodes that feel like TIA, but my symptoms are symmetrical.