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Diagnosed Yesterday 04/14/26 - Gleason 9 treatment
Prostate Cancer | Last Active: 1 day ago | Replies (30)Comment receiving replies
@byelliq6
Yes, unfortunately, wait periods for appointments at UCSF are extra long even if you are patient there. We were waiting for 6 to 12 weeks for the "first opinion" last year. I still wonder if that contributed to my husband's PC progressing from 4+3 to 4+5 with unifocal EPE , but I guess we will never know...
Try calling Stanford and say that you are considering treatment there ! That will put you in different category. They also have "second opinion" program with some generic board so do not even mention that.
Wishing great success in finding good provider 🍀🍀🍀
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@surftohealth88
Hello and thank you for the reply. UCSF is out for me. Sorry to hear about the EPE, that is my greatest fear.
As my lesion is quite large relative to the prostate size (28cc) (Pirad 5) and 1MM from the edge at the right base I cannot wait 2-4 months, would not be prudent. From what I’ve read and experienced, those of us that are diagnosed with prostate cancer are often told "don't worry" it is the slowest growing cancer or you have plenty of time... etc. Although this may be very factual for Gleason 6/7 situations, frankly, I am growing a little tired of hearing that phrase.
As many of the experts on this amazing discussion board know, every case of prostate cancer is disparate, every prostate is different, grade types, location of lesions, reaction to treatment widely varies, genetic makeup of the cancer cells and the host, severity of diagnosis or stage, and on and on and on.
Most likely I have microscopic spread and extension into the nerve bundle given the grade and volume seen in the Biopsy results above so I want to move quickly and its not that easy navigating all the gatekeepers of care and getting on schedules for treatment.