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Giant Cell Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: 16 minutes ago | Replies (16)
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Thanks everyone for your very helpful information. This had been such a scary experience, feeling so alone & overwhelmed. Your taking the time to share has made me feel a little more hopeful and definitely not alone. Thank you!

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Replies to "Thanks everyone for your very helpful information. This had been such a scary experience, feeling so..."
ess77 - Elizabeth | @ess77 | 20 hours ago

@momac59 and all... I suddenly developed both PMR and GCA following a 2nd bout with Covid in 2023. PMR hit first and was extremely traumatic. Severe pain in both shoulders and hips, unable to move, change positions in bed, unable to turn over, really fun getting out of bed to to to potty!!!

My doc put me on 15-20 mg Prednisone that helped a bunch.Then the GCA hit me with pain in both temples and sight changes, thankfully not white light or that drastic. This was a double shot of autoimmune diesases I'd never heard of brought on by Covid. My rheumatologist started me on Methotrexate for the GCA. It worked. I was on both Methotrexate and Presnisone for several month when my liver functions began to go wonky. So, as Methotrexate can play with the liver, my doc reduced and took me off Methotrexate and liver functions were/are no normal.

Suggest you ask to be put on the wait list for a sooner appointment if you are concerned about the month wait. I do that when I feel an urgency to get some testing and answers and almost always get a better time to see the doc. Or, at least for the testing...

Wishing you well and blessings... Elizabeth

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