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Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: 22 minutes ago | Replies (69)
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@jandy88us

Burning sensation may be a sign of nerve damage from inflammation. You may want to see a neurologist as well.
What is your Mycophenolate dose? Any side effects? I may be starting it soon.

What is your skin thickening pattern like? Are hands around wrists getting swollen with skin tightening that is making it hard to do things?
Do you have joint inflammation with skin darkening around wrists, knees ankles?
Any insights will be helpful. Thanks

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Replies to "@jandy88us Burning sensation may be a sign of nerve damage from inflammation. You may want to..."
jandy88us | @jandy88us | 4 days ago

@altabiznet GOOD MORNING,
I WAS ALSO DIAGNOSED WITH SMALL FIBER NEUROPATHY AND CUTANEOUS VASCULITIS.
I DO HAVE NERVE DAMAGE DISEASE AS MY NEUROLOGIST EXPLAINED IT TO ME. RIGHT NOW I AM TAKING 500MG OF MYCOPHENOLATE IN THE MORNING AND 500MG AT NIGHT. I HAVEN'T REALLY NOTICED ANY SIDE EFFECTS BUT I HAVEN'T NOTICED IMPROVEMENTS EITHER.

I HAVE A BIT OF A RASH ON TOP OF MY RIGHT HAND. IT'S A LITTLE HARDENED BUT NOT TERRIBLE. I HAVEN'T NOTICED ANY DARKENING ON MY WRISTS, KNEES OR ANKLES. I DO HAVE JOINT INFLAMMATION WHICH IS WORSE ON SOME DAYS.
MY WORST SYMPTOMS RIGHT NOW ARE THE FATIGUE AND BURNING IN MY HEAD, MY MOUTH AND MY LEGS.
THE LAST FEW DAYS I HAVE ALSO BEEN FEELING HEAVY LIKE I'M CARRYING WEIGHTS AROUND ON MY BODY.
I PRAY YOU FIND SOME RELIEF SOON. PLEASE STAY IN TOUCH! IT'S A BLESSING TO CONNECT WITH PEOPLE WHO ARE FEELING SOME OF WHAT YOU'RE FEELING!

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