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@tweetypie13 I know exactly what you're saying...telling family members or friends is useless to me no one gets how painful this disease is and robs you of any kind of fun between the pain, fatigue and sadness.. They all listen to me but they just don't get it! A few days later they will come around again and ask if I want to take a walk around town or go shopping....so I just give up telling them and just say no thanks not today. I was diagnosed Feb. 2024 and having a hard time trying to lower the Prednisone to 2.5mg. it's very painful that low. Well thanks for listening and I wish well on your journey...we all understand our pain...Joyce~~
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@joy6808 after reading this, my first thought is, tears 😭 and more tears 😭. They need to see you down, but not out. Keep fighting.
I shared the following article with my family out of town, and they “kind of got it”.
https://my.clevelandclinic.org/health/diseases/25215-polymyalgia-rheumatica
As for Pred taper , big Question, is PMR pain or cortisol recovery, or other pain? My Dr said to supplement the Pred with Tylenol for Arthritis, up to 6 pills a day. It helped. 🤞
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@joy6808 chronic pain sure does interfere with our relationships. I’ve found relief from herbal teas, Rick Simpson oil and magnesium soaks. Amazon has the deal six 3 lb epsom salt bags for less than $20. It really provides relief. Sometimes all we can do is make ourselves more comfortable.