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Anyone dealing with ANCA GPA Vasculitis?
Autoimmune Diseases | Last Active: May 17 9:12am | Replies (37)Comment receiving replies
@SusanEllen66 I was diagnosed with GPA ANCA in September 2025. I’m looking to connect with another has that also.
Bless you!
Replies to "@SusanEllen66 I was diagnosed with GPA ANCA in September 2025. I’m looking to connect with another..."
@cjd19 I would love to connect. I was also diagnosed with GPA ANCA September 2025
@cjd19
So how are you doing? Don’t you feel blessed they found a diagnosis?
I didn’t realize I was so close to the end when they finally diagnosed it.
I’m on a 2 year treatment plan that includes: TAVNEOS, and 6 month Rituxan with steroid infusions, and a 3 times a week antibiotic as a maintenance to keep from catching anything.
I’m super cautious about being around the public.
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@cjd19 I had Cutaneous Polyarteritis Nodosa. It’s the most rare form of Vasculitis.
My CPAN has gone as quickly as it showed up.
I don’t have GPA ANCA but there are others on here who do.
Blessings on you.