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Diagnosed Yesterday 04/14/26 - Gleason 9 treatment

Prostate Cancer | Last Active: 8 hours ago | Replies (30)

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Profile picture for Jeff Marchi @jeffmarc

At your age, a lot of people say they would prefer surgery because you can get radiation after. I had surgery at 62 and had to have radiation four years later. Didn’t stop there, I have BRCA2 so it keeps coming back. Still around 16 years later, even though I’ve had four reoccurrences. The drugs we have worked great.

When I had surgery, they did not give me ADT after Because I was only a 4+3. Gleason nine they frequently want to give you ADT for at least a year if not two. A lot of it depends on how well the surgery went.

I have a list of NCCN recommended hospitals if you give your location, I can tell you whether or not any of them are close.

Here is a link to a person that’s talking about newer techniques, and doing surgery. Techniques that give you a better chance of being continent and having an erection after it’s done. These are things you could talk to your doctor about.
https://connect.mayoclinic.org/comment/1548188/
While you have mentioned some of the advanced problems that can occur I see some missing. I wonder if anything was mentioned about them in your biopsy. intraductal, ductal, large cribriform, or ECE. (extra capsular extensions). They can make the cancer much more aggressive.

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@jeffmarc
Thank you for your time and sharing your experience.
As far as I know the biopsy slides only included adenocarcinoma which is vague and not ideal, I did immediately ask the urologist about the Cribriform but he did not answer, he said the slides were sent for genomic testing. I will add Ductal and intraductal to my query Thank you!! Also There were no Extra capsular extensions.