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Anyone experienced intense itch with pNETs mets to the liver?
Neuroendocrine Tumors (NETs) | Last Active: Jun 1 1:14pm | Replies (36)Comment receiving replies
@timaudette I was diagnosed in Jan.2025 with a tumor on the distal end of my pancreas and metastasis to my liver. Treatable, slow growing grade 2, well differentiated. Started immediate lanreotide injections with follow up CT's every 3-6months. No side effects other than rash and severe itching which may be from bile salts not controlled by liver? Specialist and oncologist don't really know. Looking at radioembolization for control? Unique case. Fortunately my treatment is all covered in Canada,
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@billbo I’m glad to hear your treatments are covered. Fortunately for me, my treatments have all been covered, with the exception of some copays. It sounds like we have very similar situations. In it for the long haul. I heard a quote the other day, “Now that I have years added to my life, I need to make sure that I add life into every year!” It’s not easy to overcome the anxiety and some of the fear that comes with all of this. I hope I can add a lot of life to every year I have!