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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: 12 hours ago | Replies (361)Comment receiving replies
Hello all, I have a diagnosis of CIDP, I did IVIG infusions for awhile. I developed a reaction, so my Neurologist switched me to Vyvgart hytrulo. I have been giving myself subq injections at home for about 4 months, I have since started having migraines, vertigo, nausea, vomiting.....my Neurologist added 3 new medications. Anyone else been on Vyvgart hytrulo? I have also started having muscle spasms in my cheeks close to my jaws, increased weakness and exhaustion.
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@hjw473 I am completing 2 months of self-injected Vyvgart hytrulo. Nest week is the last shot. So far, no side effects and no pain relief. I have Waldenstrom's (supposedly in remission) and a nerve condition called anti-mag polyneuropathy which causes pain, numbness, tingling, etc. in my feet and ankles. I have had this condition since 1991. Good luck.