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Anyone experience Laryngeal chondroradionecrosis years post treatment?
Head & Neck Cancer | Last Active: Apr 15 10:08am | Replies (3)Comment receiving replies
@hillx001 you have really had all the complications. I admire your strength. The above article mentioned does explain it as an infrequent occurrence. If it were me, I would seek out a referral to an ENT program at a large referral or cancer center. When we have something that is not commonly seen, we need to find a medical team who knows how to deal with it. I suspect you are no stranger to advocating for your medical care and here is another reason to keep pushing. If hyperbaric O2 therapy can bring about healing for you, then it is worth pursuing. I wish that we didn't have to deal with all these radiation late effects, but then it is better than the alternative of no treatment. Do you live close to a large medical or cancer center?
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@sepdvm
Thank you for your response. I am about 2.5 hours drive from the University of Minnesota where I received most of my treatment at the Masonic Cancer Center years ago when I lived in the Twin Cities. I had a wonderful ENT specialist who oversaw my diagnosis and coordinated my treatment at the Masonic Cancer Center. Unfortunately, he was recruited to be the Chief Medical Officer at another university out of state. More recently, I have been to the Mayo clinic for diagnosis of my baroreflex failure problem and that is about 4 hours drive away from where I currently live. I agree with your suggestion and plan to seek a second opinion from one of the above clinics to confirm the diagnosis and explore treatment options.