@eghclark Good morning, I am so sorry to hear that! I too was diagnosed with Systemic Sclerosis a couple of months ago. I've been battling strange symptoms for a few years now. My new rheumatologist prescribed Mycophenolate for now. I have not noticed any real difference, but she believes it'll be a long term medication. My worse symptoms are burning in my head, mouth and legs. What symptoms are you dealing with?
Have you checked out the National Scleroderma Foundation? They have lots of information.
I pray you find some peace and comfort.