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Giant Cell Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: 29 minutes ago | Replies (13)

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Profile picture for John, Volunteer Mentor @johnbishop

Hi @momac59, So sorry to hear you are also experiencing some vision loss in the past six months. I've had polymyalgia rheumatica (PMR) twice and was always worried about GCA but fortunately never had any of the associated symptoms. I did a search of Connect using "is it GCA" and thought you might like to scan through the results while you wait for others to respond - https://connect.mayoclinic.org/search/.

I'm tagging @tsc who has also experienced GCA to see if she may have some thoughts or suggestions.

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Replies to "Hi @momac59, So sorry to hear you are also experiencing some vision loss in the past..."

@johnbishop
Hi @momac59, I had PMR and GCA, undiagnosed for a year. With the GCA, three incidents of visual disturbance in my right eye which lasted about 10 minutes. I could only see white out of my right eye. I had a temporal artery biopsy and was positive for GCA. I started on prednisone 40 mg and tapered every two weeks. I was okay for a year, then relapsed and did the prednisone treatment again. A doctor friend told me if I ever had visual disturbance again to go to the ER immediately.
Did you get a temporal artery biopsy?
I hope you can get to the bottom of this and get effective treatment.