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Dilated cardiomyopathy.

Heart & Blood Health | Last Active: Jul 29, 2019 | Replies (21)

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@madhatter

Hello, I am new to the Mayo Clinic Connect -I was born with MVP and didn't have any major problems until I had Robotic Mitral Valve Repair in 2017, which was due to bileaflet prolapse and severe regurgitation. My EF was at 32 in January the following year. I had an MRI that showed no signs of having a heart attack. I went through cardiac rehab from January through April and was feeling stronger. I did however have Tachycardia that started around January 2018, which I started taking Corlanor 2.5 mg twice a day. I had to decrease to once a day due to presyncopal symptions. I took this for a year and continued excercising. In May of 2018 my EF was 55%, which stayed at that % until an Echo that I had in April 2019. My EF is now 40% and showing signs of mitral regurgitation which there was none post surgery. I also was diagnosed with hyperlipidemia with an LDL of 198 and started Crestor. I have nonischemic cardiomyopathy and grade 1 diastolic dysfunction. I started taking Ramipril 2.5 mg once a day and Carvedilol 3.125 mg twice a day. I started seeing a new Cardiologist in May and he wanted to check for blockages by doing a Cardiac Cath. I have no blockages. He had me stop taking the Corlanor. I am currently feeeling more tired and my heart rate is increasing during non strenuous activities like walking up a flight or two of stairs. My problem is since I had my surgery my BP has been low. I am now getting readings of 88/68 more frequently. I am concerned about taking higher doses of my medications because my BP is already low, but I am having more symptions and tire more easily. Does anyone know of any medications that will help my heart to recover that does not have an effect on blood pressure. I will have another ECHO done in November. Thank You

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Replies to "Hello, I am new to the Mayo Clinic Connect -I was born with MVP and didn't..."

Do not be afraid of higher doses of medications that lower the blood pressure. Are bodies are amazing! If your meds are titrated slowly (very slowly), your body adjusts and the BP might stay stable. If your BP goes down, you go back to the lower doses and later try again.

hello @sophieshor : your story has some matches with mine, quite similar, of course not 100 %.!!. Not to spite I can mention the treatment I got ,apart from other drugs, like beta-blocker . I described it in some posts / mayo connect, The cardiologist gave me Digitoxin, which is a very old medication, but now the cardiologists deal with this preparation again. I would recommend you to ask your cardiologist. I know that it ist available in the USA . maybe you can look it up in the medical literature, otherwise I can explain the effects of digitoxin on your heart. My heart improved definitely.
yoanne