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Profile picture for kathyfujii @kathyfujii

Thank you for sharing your experiences. I'm so sorry to hear about the latest surgery and complications.

Can I ask where you had the surgeries. Were they done at the high volume centers you recommended.

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Replies to "Thank you for sharing your experiences. I'm so sorry to hear about the latest surgery and..."

@kathyfujii While I had consults with Mayo Rochester,(don’t recall surgeon’s name now) And Dr. Eric Liu, Boulder Colorado

I ultimately stayed within my state. Simply for the logistics of it all. I am not saying that is or was the smartest move… I ultimately went with Cleveland Clinic, and surgical oncologist Dr. Matthew Walsh. They are a high volume hospital with high volume robotic and laparoscopic pancreatic surgeries. I see a separate Net specialist oncologist and a gastroenterologist both associated with The James Cancer hospital in Columbus, Ohio as well.

If the s**t ever hits the fan I personally will go see Dr. Eric Liu in Colorado again.

Right now all are in agreement that if it can be cut out nothing but surveillance is needed in my case.

I hear it echoed again and again by them, that knowing when to treat, and when not to treat, is as important as how to treat.

Have you made a decision that you are comfortable with at this point?