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Hi @jillybeans22,
Welcome to Connect. I moved your message to this existing discussion on dilated cardiomyopathy because I thought it would be beneficial for you to be introduced to fellow members who have discussed much of what your daughter is experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
In addition to @predictable @tiredofbeingsick @michelep1964, I’d like to also add @amynewheart @mram79 @fr0ggie @murryone @bsox1901 @PatMattos and @jms7 who have experience with dilated cardiomyopathy. You may also be interested in this discussion on the topic;
– https://connect.mayoclinic.org/discussion/dilated-cardiomyuopathy-meds/
This Mayo Clinic page has some incredible patient stories that you might wish to read;
– https://www.mayoclinic.org/diseases-conditions/dilated-cardiomyopathy/symptoms-causes/syc-20353149
@jillybeans22, I'm glad to to know that your daughter is showing some improvement; could you share a few more details about her progress? Does she have an implanted device like a pacemaker or LVAD?
Replies to "Hi @jillybeans22, Welcome to Connect. I moved your message to this existing discussion on dilated cardiomyopathy..."
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She was diagnosed in Late October of 2017. They did all the tests and could not figure out what caused it. They are assuming it was from the flu, she had been terribly sick the previous April. She just had an Echo in March and her EF was up to 35-40% she was previously at 27% She does not have any devices implanted. She just wore the heart monitor for two weeks but has not gotten the results yet. So we are waiting on that to see what may happen next. The Dr. has not ordered another Echo nor the MRI of the heart to see if there was damage. The Dr. said as long as she showed the improvement doing those tests would not change the course of treatment. She has started cardiac rehab. She also is over weight and has been told she needs to get the weight off. when she exerts herself she sweats terribly. Even just going up a flight of stairs. I will let you know what the result of the heart monitor are. She is on 3 drugs as of now, blood pressure meds, beta blocker and I don't know the 3rd. Dr. said she needs to get her stamina up.