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jaybb1 avatar

My treatment journey with tongue cancer: And yours?

Head & Neck Cancer | Last Active: May 26 11:38am | Replies (29)

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Profile picture for zenren14 @zenren14

@jabby1
My Onco said I had to wait a year (post tx) to see a MLD Specialist HNC.
SLP recommended Cancer RehabPT online exercises, which I still do today.
Water drinking & exercises especially swimming does wonders for lymphedema.
Lymphedema is alot better since 3 yrs out NED.

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Replies to "@jabby1 My Onco said I had to wait a year (post tx) to see a MLD..."

@zenren14 Good feedback: swimming. I will need to go back to the "Y' and restart my swimming that I stopped several months ago.

@zenren14 You waited a year to start seeing a MLD specialist in HNC. Interesting. Did not know there is a MLD therapist dedicated to HNC. Tomorrow is will meet my therapist and see if she is MLD or mainly motion. And find out her experiences treating HNC. I am reading in some articles that therapy, MLD, should be done initially 3 to 5 times a week. I thought by talking to a few centers that it is 1x a week since that is what they do. Anyone going multiple times a week. ???Thank you everyone for responses

@zenren14 I love The CancerrehabPT. Her videos are great on YouTube.