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My treatment journey with tongue cancer: And yours?
Head & Neck Cancer | Last Active: 5 days ago | Replies (29)Comment receiving replies
@sandy8043 Thank you--Sandy. Now I know what to expect over the next 2 or 3 years. Still wondering if beyond neck--- Lymphedema can spead to upper chest area (but not shoulders) where I have disconfort and tightness. I was thinking that dry-mouth would correct itself over the next year or two, but that is to be seen. I was not aware of face compression wrap, will look into it
Replies to "@sandy8043 Thank you--Sandy. Now I know what to expect over the next 2 or 3 years...."
Hi @jaybb1
Your upper chest having discomfort and tightness could be from aspirating on your own salvia, eating food or liquids. Sometimes you may not even know that it's happening. If you get CT scan with part of your surveillance after treatment, it should be able to detect it. Happened to me which turned into a low-grade aspiration pneumonia that I was walking around with for many months. I figured it out with my own research and got a referral from my ENT to see a pulmonologist who gave me an Aerobika Device as mucus was plugged up and this released it. Since then, it has reduced substantially and I even can take very deep breaths again without coughing or feeling that tightness.
God Bless
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@jaybb1 here is the website for the face wrap. I use it with a "chip bag" from my OT. Its a bag of foam rubber chips. Sounds weird but works great. I got my first one from my Mayo OT and it worked well. Since then I buy them directly from the company. The one they sell on Amazon is too hard to get on right.