← Return to Had pain pump implanted. No relief. Anyone have similar experience?

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Profile picture for gizmojay @gizmojay

Common stuff that comes up:
-tolerance builds faster than expected (even intrathecal)
-catheter placement isn’t ideal, so the drug isn’t hitting the right level
-opioids alone don’t work well if there’s a neuropathic component (butt/feet pain especially)
-people sometimes only improve after adding another med (clonidine, bupivacaine) or switching to something like ziconotide
Also that “94% success rate” is pretty optimistic vs real-world results, especially with long-term injuries.
If your trial was a bolus and now you’re on continuous infusion, that could explain a lot too.
Honestly, you’re doing the right thing pushing for adjustments—I'd definitely ask about combo therapy and possibly checking catheter placement at your next visit.

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Replies to "Common stuff that comes up: -tolerance builds faster than expected (even intrathecal) -catheter placement isn’t ideal,..."

@gizmojay Thanks for your reply. I’ve had the catheter checked a few times. All is good. I had the output cranked up to 4.2 mg/24 hours with 6 boluses. I soon went into spasms of vomiting. Had to have it turned back. I’m currently at 3.2 mg/24 hours. Still no relief. Next week my PM doc will be adding clonidine. Hoping against hope it helps.