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Polymyalgia Rheumatica (PMR) | Last Active: Apr 15 1:04pm | Replies (126)
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Thank you for the advice. When I told the rhematologist that I was concerned that such a high dosage was no longer giving me full relief of pain he said I likely have caught a virus which would explain the body aches. He did a ton of bloodwork so hopefully he can glean if that's what's driving the pain or if for some reason the prednisone has become less effective. I'm trying to be heard and not dismissed since I have been living with this for 4 months and am really intune with everything my body feels. I'll keep after it for sure. My worry is that he wants to start tapering once I start the injections so I may be unnecessarily anxious about the change.
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@mwhite6262
The blood work should be helpful and hopefully you can get your answer. Do not rule out seeing a hematologist if your blood work suggests something else going on. See an endocrinologist if it's warranted too. If your rheumatologist isn't listening to you, you can always get a second opinion. Hopefully he's pushing you to taper down because of the known side effects of the prednisone but you need to be able to resume your life with minimal pain. Keep your primary care doctor in the loop and don't be afraid to use them as a sounding board. Reach out here whenever you want. I hope your wait is short.