@2me so it has been a very long, exhausting process the last eight months or so. We decided to switch neurologists and go to one affiliated with a medical school and also specifically working with dementia patients. This Dr. Ordered a lumbar puncture instead of a PET scan and a 3day infusion of thiamine (b1). So he had the blood test, an mri and a lumbar puncture which all showed Alzheimer’s. He also had the thiamine infusion and stopped drinking alcohol, after which he seemed to improve and has remained relatively good for the last three months. The neurologist recommended we wait 6 months for a better baseline due to his improving with the infusion and no alcohol. That is where we are today. Confused and anxious basically since I know the leqembi and kisunla drugs have to start early to be effective. I asked the neurologist and he said six months would not make a difference - so I need to place my trust in someone.

Sorry for such a long post. It’s so hard to know what to do! Thank you for reading this!