@mssewest I just wanted to check in. What kind of support do you have right now? I'm also wondering if palliative care is available to you--it should be. That would be pain control, maybe some visiting medical help, I think it varies from program to program but could be useful. Palliative care is not hospice--it is just an add on to treatment and I have two friends who are really benefitting from it. Also do you have any therapies--physical, occupational--that have been prescribed? These might give you more strength in your own home.
I'm sorry for your ordeal, and you sound understandably exhausted. You might have a nurse navigator/oncology social worker who can talk with you about things that might help? Thinking of you and hoping things improve.