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Profile picture for labrown @labrown

@memoriestomoments Thank you for your reply. It truly blessed my heart. Walking this journey with your husband for 16 years gives you a lot of experience to be able to share with others. You sound like you are a very compassionate person and your husband is fortunate to have you. I agree with your approach to keeping him occupied with pleasant events and moments. I try to do the same with my husband. I cannot leave him unattended so where I go he goes. We are out and about pretty regular running errands or going to appointments. He attends a four hour Respite program two days a week at a local church that is wonderful. He never thinks he wants to go, but once there he enjoys it and he is always smiling when I pick him up. We also have teenage grands that keep us on the go supporting their various activities. He seems to enjoy it all. At home I try to find things he can help with...washing up the dishes, folding laundry, doing puzzles, and going for walks. His paranoia appears when I least expect it. We can be having a great day and then go for a walk at a local park and suddenly he is scared to the point that we have to leave. He believes people are there to hurt him, they have guns (it's strange, he never includes me in the danger that he feels) they are hollering at him...the actual scenario was there was a nice couple there with their grandchildren, they said hello and commented on how pretty our dogs were and from that it began. He did have an appointment with his neurologist yesterday and he adjusted his medication so maybe it will help. Thank you again for taking the time to share so much with me. God be with you as you continue on this journey with your husband.

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Replies to "@memoriestomoments Thank you for your reply. It truly blessed my heart. Walking this journey with your..."

@labrown

I'm glad to hear that some of my experience resonated. It seems like you too have found the way to keep his mind positively engaged. I do hope that the medication has the needed effect! And remember that the doctors are always working off of averages and our loved ones are individuals. (My husband was prescribed a "very well tolerated" medicine and, in his case, it shut him down completely! ) So we have to advocate calmly but assertively until we get the desired effect. There are so many options among which the doctors can choose.

I have my fingers crossed for you. Outside of this very distressing impact, it seems like your husband is able to be quite contented. I'm very glad for you about that.