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Anyone go through duv/romi treatment before an allogenic BMT?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 19 3:22pm | Replies (37)Comment receiving replies
@loribmt
We are from Michigan so more than 600 miles from Rochester so I was told I will need the 100 days near Rochester. We will be trying to get into GoL for that. My husband will be my caretaker with relief from my best friend. He says he does not need back up but I really think it might help for him to get a break in the middle of this. From all of the reading I have done (I am a researcher and dove into research papers that are fascinating) I am more worried about him than me.
Replies to "@loribmt We are from Michigan so more than 600 miles from Rochester so I was told..."
@lorieliebrock I echo the sentiments of @alive! Your husband will appreciate having a back up caregiver for a little break. My husband was my caregiver too and was an absolute brick through all of my recovery. He didn’t think he needed a break. Our daughter lives 1.5 hours from Rochester and when ‘we’ (team, my husband and I) felt I was stable and comfortable enough, she would drive down for a long weekend to ‘baby sit’ her mom. That gave my husband time to drive back home four hours to spend several days at our house to check on things and to just sleep peacefully. It was enough of a break that he realized he was feeling much tense with that time out.
The Gift of Life transplant house is an excellent facility from comments other members have made. Since you are a researcher, you might appreciate this podcast on GOL: https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/gift-of-life-transplant-house-mayo-clinic-radio/
Also, here is a link to the search in Connect for conversations around the GOL: https://connect.mayoclinic.org/search/
Since you’re already finding this entire process fascinating, after your transplant I’ll give you a book recommendation that I think you’ll really delve into! My copy is so dog-eared and well highlighted. I also bought a digital copy for easy reference.
Do you have any specific questions about the long term stay, the first 100 days, the transplant process?
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@lorieliebrock Your husband will definitely need a backup during your stay in Rochester. My husband took mini breaks during my chemo, SCT and recovery. It’s too much pressure on one person, especially emotional pressure.