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Profile picture for otherside @otherside

I've refused the osteoporosis medications for 20 years, ever since I was "diagnosed" with osteopenia on my first DEXA. My second DEXA showed stability in the T-scores, but the endocrinologist STILL pushed the meds. Be apprised that virtually all endocrinologists will push meds--you could consult with 100 and find no difference among them. And they'll insist that serious side effects are "extremely rare"--a claim that the thousands of anecdotal patient reports to the contrary, on support sites such as this, call into question. My own belief, from reading over the last two decades and following patients' firsthand reports, is that this "disease" is being overhyped and that meds to "treat" it are being prescribed indiscriminately, to the detriment of many. I don't think I can post a link in this forum, but one article you may find of interest can be found on the website of npr.org--it's entitled "How a bone disease grew to fit the prescription." It details the arbitrariness behind the DEXA system, which is currently used as the sole determinant of who falls within the "needs treatment" category. As for the "1 out of 2 women will get a fracture" statistic: also be aware that there's a recent trend for doctors to designate virtually ALL fractures, including those that were unquestionably considered traumatic--e.g., slip-and-fall wrist fractures sustained on ice--as "fragility fractures," thus enabling the expansion of women who "need treatment." The "1 out of 2" does not mean those fractures were all major, e.g, hip fractures, and it's dishonest if those who cite that statistic are implying otherwise.

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Replies to "I've refused the osteoporosis medications for 20 years, ever since I was "diagnosed" with osteopenia on..."

@otherside I agree with you. Doctors prescribing Fosamax will say it offers a 50% fracture reduction. What that means as an "absolute risk" is that if 100 women with severe bone loss take Fosamax for three years, instead of two people getting a hip fracture -- only one person will get a fracture, a 50% improvement. So, to prevent one hip fracture, 98 women take the drug with no fracture benefit.

From AI Assist: "Bisphosphonates are estimated to prevent 1 hip fracture for every 100 women treated over three years. However, they are more effective at reducing vertebral fractures, with a higher prevention rate."

Consumer reports article: https://www.consumerreports.org/cro/2012/04/popular-osteoporosis-drugs-come-with-mounting-concerns/index.htm

@otherside
Thank you. That tells me a lot. I'll look for that article. I don't know why it's called a disease. I'm functioning, very active, and eat well. My blood scores are all in normal ranges. I take Vit D, K2, Mg, and B12. I know my own dr will be happy to call it a disease that needs treatment. In fact, she emailed me telling me to come in to discuss. Of course she wants her fee. It's all big business and it's scary. I'm not ready to deal with any side effects of drugs.